Tag: lupus

BOOK, Harmonious Health 4 Life, Soul Notes, Write Pray Recover

Science Meets Soul:Soul Notes – Love, Wendy

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I use writing as a tool for healing.
When we write down what we are feeling internally, it activates a part of the brain called the Reticular Activating System (RAS).
Writing with pen and paper stimulates this system, which filters the information our brain needs to process and supports my healing journey.
I teach about RAS in all of my mental health and wellness workshops, and I follow my knowledge into action by integrating evidence-based wellness strategies that reinforce intentional practices to retrain the brain toward calm, clarity, and healing.
This is the foundation of my holistic and integrative healing journey.

Carrying Lupus pain day after day is incredibly heavy…showing up, staying open, doing everything possible to heal and being unable to sleep…is completely exhausting in a way that most people can’t comprehend. 

When your body keeps screaming despite all your effort, it’s not just physical pain anymore; it’s heartbreak, frustration, and grief for the life I want back where I don’t have to be mindful of every move, every position, every activity and where I can make and keep plans with family and friends, or to not have to drop a course that I registered for because even sitting at home on the computer and then completing assignments is too painful after working a full day. 

The doctors tell me I need to give it 8-12 weeks. It has only been 3 since I began treatment. 

I pray for strength. I pray for patience and for grace…one breath at a time…

I continue to remind myself that I have been here before, and Lupus did go into remission.

I write. I process. I heal…

This is what resilience looks like in real time…messy, painful, faithful. One breath, one word, one day at a time.

The Reticular Activating System helps us reframe, refocus, and retrain the brain. Writing activates healing from within…

Science meets soul.

For anyone walking through invisible pain—you are not alone.

Healing asks for patience, and faith holds the light when strength runs low.

Love and blessings,

Wendy

BOOK, Harmonious Health 4 Life, Write Pray Recover

I Am Not Invisible – Love, Wendy

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The “invisible” nature of lupus flares can make it hard for others to understand the severity of the illness, leading to misinterpretations and lack of support. 

“Lupus is a disease where the immune system mistakenly attacks healthy tissues and organs, including causing “Lupus Fog/Brain Fog.” It can affect any part of the body. When lupus affects the spine, the immune response attacks normal proteins, leading to joint and nerve destruction, bone loss, inflammation, and swelling. As damage occurs, your spinal discs are less able to absorb shock, which can lead to the pain associated with DDD.” (Degenerative Disc Disease).

And this is my diagnosis…Lupus (SLE), and DDD.

Due to a surgery in July, 2025, Lupus was activated, and I have been unable to recover thus far. Prior to that surgery, I was footloose and fancy free. 😊

Recently I read about a woman experiencing a flare who wrote: “For me, I may see a rash appear on my face and I know this is the beginning of a flare. Friends, family, and co-workers often can’t begin to understand that the rash is the beginning of what is taking place on the inside. You appear okay, aside from the rash, but fatigue and pain can be an overwhelming challenge.“

Recently, I went to an event and I looked like the healthiest version of wellness with my hair, nails, and makeup done flawlessly, and smiling and greeting other attendees. I was experiencing a tremendous amount of pain, and I could literally feel my legs beginning to swell, in fact, you could see my knee swelling through my pants. The burning and sharp pain shooting down my legs and in my back, in addition to my hands beginning to stiffen and swell was obvious. After about 15 minutes, a friend walked over and asked if I was okay as she noticed my demeanor had changed from when I had arrived. I told her that I really needed to go home, and I quietly made my exit, making this disease even more invisible. I always feel that I am making others uncomfortable when I am experiencing pain. I am often told by friends and family that they would have never know I was in pain because “you look so healthy.”

Lupus IS invisible. If I am not limping, one would never guess that every joint, from my arms, hands, fingers, and legs, are so swollen and in pain. I think the lupus community as a whole experiences this invisible pain.

Yesterday I arrived to work at 7:15 am, and felt confident that my Lupus was going back into remission, but by noon, after I had walked excessively, sat, stood, bent down, twisted, (all the things I was told by my doctors NOT to do), I could barely stand up. The pain was so intense, it caused me to feel sick to my stomach. When it was time to leave at 3:15pm, I was completely swollen and could only slide my left leg as I walked to my car because the swelling would not allow me to bend/step…

The great news?…

Today, I begin a new treatment…I pray that my body responds favorably.

I love my work as a Reading Specialist, a Mental Health and Wellness Educator and Coach, and love spending time with loved ones, so I am praying that the excruciating pain and profuse swelling is alleviated with this new treatment. My treatment consists of an integrative approach which is what my book, Write Pray Recover:A Journety To Wellness Through Spiritual Solutions and Self Care, encourages.

The marriage of holistic solutions and traditional medicine offers a variety of treatment tailored to my health and wellness goals.

And please know that Lupus flares ARE invisible. Your smile and empathy encourage me to keep going.

Love and blessings,

Wendy

For more information on Lupus, go to https://www.lupus.org

BOOK, Soul Notes, Write Pray Recover

This Too Shall Pass:Soul Notes – Love, Wendy

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Today, I remind myself that it’s okay to cry when the pain overwhelms me…It’s okay to grieve the body I wish I had right now…and I will again.

But it’s also important to honor the fierce woman who has carried myself through Lupus, spinal trauma, and loss…including 13 years of sustained, successful and healthy addiction recovery through holistic practices with a strong mindset of “I can do this,” and still show up every day with love, service, and hope.

That isn’t weakness. That is courage.

I acknowledge the setback without letting it define me, and it roots me firmly in the truth of my ongoing recovery, and the life I choose.

I honor the tears, the grief, and the physical pain without diminishing my resilience or accomplishments. 

And so today…I rest and nourish my body as it reminds me that this is just a temporary setback where I simply overextended myself yesterday out of eagerness and love of my work.

“This too shall pass.”

Reflection: “How can I honor both my eagerness to engage with life and the wisdom of my body’s limits, so that my courage and resilience continue to grow without unnecessary suffering?”

Mantra: I embrace and surrender to what my body needs to thrive.

Love and blessings,

Wendy